Special-needs planning
How a trust, a will and an ABLE account hold property for a beneficiary who receives SSI or Medicaid, with the federal and Florida rules cited.
Supplemental Security Income (SSI) is available to an aged, blind or disabled individual whose resources, other than excluded resources, do not exceed $2,000, or $3,000 for an individual living with a spouse (42 U.S.C. § 1382(a)(1)(B), (a)(2)(B), (a)(3)). Property left outright to a beneficiary belongs to the beneficiary. A trust holds property for the beneficiary instead.
Third-party trusts. The Social Security Administration defines a third-party trust as a trust established with the assets of someone other than the beneficiary or the beneficiary's spouse, for example a grandparent's trust for a grandchild (SSA POMS SI 01120.200B.16). Trust principal is not an SSI resource if the beneficiary has no legal authority to revoke or terminate the trust or to direct the use of the principal for the beneficiary's own support and maintenance (POMS SI 01120.200D.2). The federal Medicaid trust rules apply to a trust established by the individual, the individual's spouse, or a person acting for or at the direction of either, using the individual's assets, other than by will (42 U.S.C. § 1396p(d)(2)(A)).
First-party trusts and pooled trusts. A trust holding the assets of a disabled individual under 65, established for the individual's benefit by the individual, a parent, a grandparent, a legal guardian or a court, is excluded from the Medicaid trust rules if the State receives all amounts remaining at the individual's death, up to the total medical assistance paid (42 U.S.C. § 1396p(d)(4)(A)). A trust established and managed by a nonprofit association that keeps a separate account for each beneficiary and pools the accounts for investment has a parallel exception (42 U.S.C. § 1396p(d)(4)(C)). POMS SI 01120.200 refers to SI 01120.203 for trusts that contain the individual's own assets (SI 01120.200B.12).
Distributions. Under POMS SI 01120.200E.1, cash paid from the trust to the beneficiary is unearned income. Food or shelter received by the beneficiary because of a payment to a third party is in-kind support and maintenance, valued under the presumed maximum value rule. Payments to third parties that result in the beneficiary receiving non-cash items other than food or shelter are in-kind income if the items would not be partially or totally excluded non-liquid resources if retained into the month after receipt (POMS SI 01120.200E.1.a). Disbursements to third parties are otherwise generally not income, and the list of those that may not count includes educational expenses, therapy, transportation, professional fees, medical services not covered by Medicaid, phone bills, recreation and entertainment (POMS SI 01120.200E.1.c).
Florida law. A trustee administers the trust in accordance with its terms and purposes (§ 736.0801, Fla. Stat. (2026)). When a trustee may make discretionary distributions, a creditor of the beneficiary may not compel a distribution or reach the beneficiary's interest (§ 736.0504(2), Fla. Stat. (2026)). This page cites the SSI rules in POMS SI 01120.200 and the federal Medicaid trust rules in 42 U.S.C. § 1396p(d). It does not address other benefit programs.
What this means for you
- An outright bequest is the beneficiary's property. SSI eligibility requires nonexcluded resources of $2,000 or less for an individual with no spouse in the household (42 U.S.C. § 1382(a)(1)(B)(ii), (a)(3)(B)). A bequest to a trust the beneficiary cannot revoke, terminate, or direct for support is not the beneficiary's resource (POMS SI 01120.200D.2).
- What the beneficiary controls decides the resource question. Trust principal is a resource if the beneficiary can revoke or terminate the trust and use the funds for food or shelter, can direct the use of the principal for support and maintenance under the trust's terms, or can sell the right to payments because the trust lacks a valid spendthrift clause (POMS SI 01120.200D.1.a).
- Each distribution has its own SSI effect. Cash to the beneficiary is unearned income. Payments that supply food or shelter are in-kind support and maintenance valued under the presumed maximum value rule. Payments to third parties for non-cash items other than food or shelter are in-kind income if the items would not be partially or totally excluded non-liquid resources if retained into the next month (POMS SI 01120.200E.1.a). Other disbursements to third parties are generally not income (POMS SI 01120.200E.1.c).
- The trustee's discretion is a legal term of the trust. A discretionary trust is one in which the trustee has full discretion over the time, purpose and amount of distributions and the beneficiary has no control (POMS SI 01120.200B.1). Under Florida law a creditor, including a child or spouse with a support order, cannot compel a discretionary distribution (§ 736.0504(2), § 736.0503(2)(a), Fla. Stat. (2026)).
- Gifts from relatives can be directed to the same trust. A will may make a valid devise to the trustee of a trust that is evidenced by a written instrument in existence when the will is made, if the will identifies the instrument (§ 732.513(1), Fla. Stat. (2026)). The devised property becomes part of the trust principal unless the will provides otherwise (§ 732.513(5)).
- Property of the beneficiary placed in a trust is treated differently from property of others. When a trust holds both the individual's assets and other persons' assets, the Medicaid trust rules apply to the portion attributable to the individual (42 U.S.C. § 1396p(d)(2)(B)). SSA warns that a trust described as third-party but funded with the beneficiary's property is a grantor trust (POMS SI 01120.200B.16).
Documents that apply
Each path below links to its page with the statutes and rules that apply.
Common problems
Each item cites the statute or rule it comes from.
- Naming the beneficiary directly in a will, or a beneficiary designation. The property is the beneficiary's and counts under the $2,000 SSI resource limit (42 U.S.C. § 1382(a)(3)(B)). Death benefits may instead be made payable to the trustee of a trust in existence at death (§ 733.808(1), Fla. Stat. (2026)).
- Giving the beneficiary control over principal. Trust principal is a resource if the beneficiary has legal authority to revoke or terminate it, can direct its use for support and maintenance, or can sell the right to payments (POMS SI 01120.200D.1.a).
- Paying the beneficiary cash. Cash paid from the trust to the beneficiary, including to a personal debit card, is unearned income in the month received (POMS SI 01120.200E.1.a).
- Paying for food or shelter without recognizing the SSI effect. Food or shelter the beneficiary receives through a trust payment to a third party is in-kind support and maintenance valued under the presumed maximum value rule (POMS SI 01120.200E.1.b). A trust purchase of a home or payment of a mortgage is evaluated under POMS SI 01120.200F.
- Mixing the beneficiary's own funds into a third-party trust. The Medicaid trust rules apply to the portion of a mixed trust attributable to the individual's assets (42 U.S.C. § 1396p(d)(2)(B)). The first-party exception requires payback to the State for the total medical assistance paid (42 U.S.C. § 1396p(d)(4)(A)).
- Using the first-party exception after age 65. The (d)(4)(A) exception covers a trust containing the assets of a disabled individual under age 65 (42 U.S.C. § 1396p(d)(4)(A)).
- A beneficiary with authority to direct the principal for support. SSA treats principal as a resource if the beneficiary can direct its use for support and maintenance under the trust's terms (POMS SI 01120.200D.1.a), so the beneficiary should not hold that power. The trust's successor trustee is filled by the terms, then the qualified beneficiaries by unanimous agreement, then a court (§ 736.0704(3), Fla. Stat. (2026)).
- Opening an ABLE account without checking eligibility. An eligible individual is entitled to disability benefits under title II or XVI with onset before age 46, or has a filed disability certification with onset before 46 (26 U.S.C. § 529A(e)(1)-(2)). A designated beneficiary is limited to one ABLE account (26 U.S.C. § 529A(b)(1)(B)).
Frequently asked questions
What is the difference between a first-party and a third-party special needs trust?+−
Can the trust pay for housing?+−
Does cash from the trust affect SSI?+−
Who can serve as trustee?+−
What happens to the money in the trust when the beneficiary dies?+−
What is an ABLE account and how does it differ from a trust?+−
Can grandparents or other relatives leave money to the beneficiary?+−
What is a pooled trust?+−
Can creditors reach a special needs trust?+−
What if the surviving spouse is ill or disabled?+−
Whether trust property counts against SSI or Medicaid depends on who funded the trust, what the beneficiary can control, and what each distribution buys. The rules are in the Sources below.
Sources
Each source below was read on the date shown. Statute links open the 2026 edition on the Florida Senate site.
- 42 U.S.C. § 1396p(d), Liens, adjustments and recoveries, and transfers of assets. Cornell Law School, Legal Information Institute. Medicaid trust rules; (d)(4)(A) and (d)(4)(C) exceptions and State payback
- 42 U.S.C. § 1382(a), Eligibility for benefits. Cornell Law School, Legal Information Institute. $2,000 and $3,000 resource limits
- SSA POMS SI 01120.200, Information on Trusts, Including Trusts Established Prior to January 01, 2000, Trusts Established with the Assets of Third Parties, and Trusts Not Subject to Section 1613(e) of the Social Security Act (effective May 6, 2024). Social Security Administration. Third-party trusts; when trust principal is a resource; effect of distributions
- 26 U.S.C. § 529A, Qualified ABLE programs. Cornell Law School, Legal Information Institute. ABLE account eligibility, contribution limit, qualified disability expenses, State claim at death
- § 1009.986, Fla. Stat. (2026), Florida ABLE program. The Florida Senate. Florida ABLE program, creditor exemption, Medicaid recovery limit
- § 736.0503, Fla. Stat. (2026), Exceptions to spendthrift provision. The Florida Senate. Claims that can reach a trust despite a spendthrift provision Plain-English page on this site.
- § 736.0504, Fla. Stat. (2026), Discretionary trusts; effect of standard. The Florida Senate. Creditors cannot compel discretionary distributions Plain-English page on this site.
- § 736.0704, Fla. Stat. (2026), Vacancy in trusteeship; appointment of successor. The Florida Senate. Order for filling a trustee vacancy Plain-English page on this site.
- § 736.0801, Fla. Stat. (2026), Duty to administer trust. The Florida Senate. Trustee administers under the trust's terms
- § 736.0813, Fla. Stat. (2026), Duty to inform and account. The Florida Senate. Trustee's duty to inform qualified beneficiaries Plain-English page on this site.
- § 732.513, Fla. Stat. (2026), Devises to trustee. The Florida Senate. Will devise to an existing trust Plain-English page on this site.
- § 733.808, Fla. Stat. (2026), Death benefits; disposition of proceeds. The Florida Senate. Insurance and benefit plan proceeds payable to a trustee
- § 732.2025, Fla. Stat. (2026), Definitions. The Florida Senate. Qualifying special needs trust for a spouse
- § 732.2045, Fla. Stat. (2026), Exclusions and overlapping application. The Florida Senate. Qualifying special needs trust excluded from the elective estate
- § 732.2075, Fla. Stat. (2026), Sources from which elective share payable; abatement. The Florida Senate. Qualifying special needs trust applied to the elective share
- § 732.2095, Fla. Stat. (2026), Valuation of property used to satisfy elective share. The Florida Senate. Value of a qualifying special needs trust interest
General information, not legal advice. The official text controls. Disclaimer.
